Welcome to our resource library where you can find specific information about health care issues such as Alzheimer's, cancer, and Parkinson's Disease. You can also find information about medications, complimentary and alternative medicine, and patient education to name just a few. Just click on any heading below to find a resource.
- An NHDD Speak Up Video about advance care planning.
- "30 Celebs Who Are Aging Gracefully" an AOL Healthy Living article about Tinseltown celebrities who have accepted the aging as a healthy and inspirational part of life.
- "Aging and Disability Services" plans, coordinates, and advocates for a comprehensive service delivery system for older adults, family caregivers and people with disabilities in King County.
- "Aging in place: A little help can go a long way" by David Crary of the Associated Press wrote this article, which appeared in The Seattle Times, about boomers wanting to stay in their homes as they age versus living in retirement communities.
- "Aging with the one you love" is a video that highlights love and kindness between two people where "the tenderness and playfulness of older men and the love and admiration they have for the women..."
- "Are seniors being over treated?" a Seattle/LocalHealthGuide interview produced in collaboration with The Washington Post by Judith Graham.
- "Details on the Class Act" by Paula Span for the The New Old Age blog from the New York Times.
- Full Life helps adults of all ages with chronic illness, physical or developmental disabilities.
- "Life lessons from the elderly in '30 Lessons for Living'" by Maggie Fazeli Fard for The Washington Post.
- Lifetime Learning Center is a resource that all older adults in the Seattle area should know about.
- "Needed: Health Professionals to Treat the Aging" a New York Times Retirement page article by Elizabeth Olson.
- Northwest Center for Creative Aging
- "Sharper Than a Serpent's Tooth" is a New York Times Health section article by Paula Span about Shakespeare's play, King Lear, that "portrays the indignities, vulnerabilities and conflicts of aging and family care giving."
- "Village Concept Promotes Aging in Place" by Donna Mae Mascarinas Scheib, MN, RN discusses how village living allows older adults to remain longer in their homes.
- 2012 Alzheimer's Disease Facts and Figures
- Alzheimer's-care to meet special needs is a vitality-retirement.com article shared on Linkedin by Richard Lewis in Aging with Grace.
- Alzheimer's Foundation of America
- The Alzheimer’s Project film library is an HBO-sponsored site that features documentaries that profile memory loss, cutting-edge research, and the effect of Alzheimer's on caregivers.
- Alzheimer's Reading Room--This site focuses on medical science, wellness, and the art of Alzheimer's care giving.
- Alzheimer’s Society
- "A rampant prescription, a hidden peril" by Kay Lazar and Matt Carroll for boston.com about how some nursing homes use antipsychotic drugs to control "agitation and combative" behavior in their residents, which exposes them to dangerous side effects in some cases. (April 29, 2012)
- "Dementia Must Be A Global Health Priority - World Health Organization" from the Alzheimer's Reading Room blog.
- "The Faces of Alzheimer's" posted on Right at Home by Anahad O'Connor.
- "For Elders With Dementia, Musical Awakenings" by NPR Staff is a part of a documentary called Alive Inside, which covers social worker, Dan Cohen, while he creates personalized playlists for people in care facilities with the hope that the music reconnects them "with the music they love."
- "Giving Alzheimer’s Patients Their Way, Even Chocolate" by Pam Belluck of the New York Times.
- Gladys Wilson and Naomi Feil--Naomi Feil, founder of Validation Therapy, shares a breakthrough moment of communication with Gladys Wilson, a woman who was diagnosed with Alzheimer's in 2000 and is virtually non-verbal.
- "In Push to Detect Early Alzheimer’s Markers, Hopes for Prevention" by Gina Kolata of the New York Times.
- Love, Loss, and Laughter: Seeing Alzheimer's Differently by Cathy Greenblat.
- "Study Links Eating Fish to Reduced Alzheimer's Risk" reporter Mike Krauser of CBS Chicago news radio affiliate WBBM interviews Dr. Cyrus Raji of the University of Pittsburgh School of Medicine about his work that established a link between fish consumption, brain structure, and Alzheimer's.
- "What a WONDERFUL group!" is a Hallmark Heroes with Regis Philbin video featuring Kathy Hatfield who cares for her 80 year-old father who has Alzheimer's.
- Back Pain Support Group is a non-profit message board and live forum for "the open exchange of valuable information between fellow back pain sufferers." This site contains no advertising banners, browser cookies, registration sign-ups, and such.
- Brain Injury Association of America is the oldest and largest brain injury advocacy organization in the nation. They are the "voice of brain injury" that advocates, educates, and "brings help, hope, and healing to millions of individuals with brain injury."
- KeepAbreast is a breast cancer decision tree for patients and their loved ones.
- "Breast cancer toll among black women fed in part by fear, silence" by Venessa Williams for The Washington Post (March 20, 2012).
- "8 Life Issues You're Bound to Face When Caring for an Aging Parent" by Connie Matthiessen, Caring.com senior editor.
- Caregiver Stress Frequently Asked Questions
- The Caregiver's Path To Compassionate Decision Making by Viki Kind offers "tools and techniques that will limit your frustration and fears, and help you make informed, respectful decisions."
- "Caregiving as a 'Roller-Coaster Ride From Hell'" by Jane E. Brody; posted on Right at Home by Jenn Denfield on April 11, 2012.
- Caring Connections provides information and support for "planning ahead, caring for a loved one, living with an illness or grieving a loss."
- Cost of Care--State Averages
- The Empowered Caregiver Network is a network for caregivers seeking information and support.
- National Center on Elder Abuse provides a help hot line and resources for adult protective services.
- "Respite Care: The Act of Looking Back" is an article from The Intentional Caregiver about the importance of respite for caregivers, and how it "refreshes, rejuvenates, and revives the caregiver."
- "The Parent Trap" is a BethesdaMagazine.com article by Marilyn Werber Serafini about the "sandwich generation," a growing group of people who care, not only for their children, but for their parents as well.
- Personal Safety Nets provides a Home Care Quality Check List that will assist you in selecting the best caregiver.
- Pivotal Crossings provides tools for awareness, comfort, and confidence to take on personal and family challenges.
- "The Growing Contributions and Costs of Family Caregiving" from Valuing the Invaluable: 2011 report by Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula of the AARP Public Policy Institute.
- "Why Should a Caregiver Ask for Help" is The Intentional Caregiver's article about asking for help when a caregiver needs it the most.
- "New Study Estimates Calorie Reductions Needed to Achieve Obesity-Prevention Goals" is a Robert Wood Johnston Foundation article about how obesity rates in children can be reduced by eliminating excess calories each day. (April 12, 2012)
- CenterWatch is a leading source of clinical trials information for patients as well as clinical research professionals.
- Current Controlled Trials is an international database of randomized controlled trials. Researchers who want their study results published in one of the leading medical journals are now required to post their studies in this database.
- IDE Early/Expanded Access for medical devices is a guide to how to market your device.
- The Marti Nelson Cancer Foundation's Website CancerActionNow includes a partial list of disease-specific patient advocacy groups and foundations. These groups often have information about current trials, and some even maintain cancer-specific databases. These include: Clinical Trials and Noteworthy Treatments for Brain Tumors. Phone toll free 1-888-295-4740.
- Mayo Clinic Clinical Trials is a comprehensive listing of clinical trials in various states around the country. It includes information about why the trial is being done, who is eligible to participate, contact information, as well as where the trial is located.
- Pancreatica.org. Phone 1-831-658-0600.
- The Physician Data Query (PDQ) clinical trials database, run by the National Cancer Institute, includes more than 2000 clinical trials. You can also get information by calling toll free 1-800-4-CANCER. (This same database can be accessed through the National Library of Medicine's database ClinicalTrials.gov.)
- The TrialCheck database is maintained by the Coalition of Cancer Cooperative Groups. The coalition's members include many of the conductors of large cancer clinical trials in the United States. Phone toll free 1-877-520-4457.
Complimentary and Alternative Medicine
- Center for Mind Body Medicine
- Sanoviv Medical Institute--a medical facility, practicing Functional Medicine
- Office of Cancer Complimentary and Alternative Medicine at the National Cancer Institute.
- "Anti-depressants do more harm than good: extensive evidence" is a Stone Hearth News article about commonly prescribed anti-depressants and the problems that arise from using these medications.
- "A lesson in dying," Phillip Gould Shares his feeling a few weeks before his death
- "'Best Care' may be dying well, say hospice, palliative docs" is a USA Today article by Janice Lloyd that presents key points about hospice and palliative care in regards to dying well as an option.
- "Looking for a Place to Die" is a New York Times Op-Ed article by Theresa Brown about the challenges of obtaining hospice care for the dying.
- "Why Jack Kevorkian had a profoundly correct message" by George Lundberg, MD is an article about Kevorkian's work with assisted suicide.
- Adult Abuse and Prevention information from the Washington State Department of Social & Health Services.
- Protecting Seniors is a service sponsered by the Washington State Office of the Attorney General that provides information about senior fraud, internet safety, dealing with death, Medicaid fraud, prescription drug prices, and vulnerable adult abuse.
- "7 Questions to Asik the Doctor About Preventing Falls" by Laurie Udesky, Caring.com senior editor.
- "Designing Strategies to Prevent Falls" by Rein Tideiksarr, PhD.
- National Fibromyalgia Association , serving and supporting the Fibromyalgia community since 1997.
General Health Information
- A deadly information gap--Op-Ed from boston.com piece about how many doctors lack the motivation to communicate with each other.
- Agency for Health care Quality and Research--recommendations based on the latest scientific evidence are available.
- "A Guided Tour of Your Body." Learn about your body and its vital organs from this New York Times Health tutorial.
- American Heart Association--information about understanding blood pressure readings, ways to deal with stress, what your cholesterol levels mean, and more.
- "The Biggest Wasted Resource in Health Care? You" is an ABC New opinion by Dr. Roni Zeiger.
- CaringBridge.org is a free site that helps patients and their families stay connected, as well as updating a wider network of family and friends.
- Contact Elected Officials is a useful USA.gov page that provides a reference for contacting your elected officials. You might find this page useful if you ever want to contact your senator, congressional representative, or even the president about health care and other related topics.
- Cost of Care--State Averages
- Kaiser Health News Hospital Patient Satisfaction Ratings by Region.
- Mayo Clinic--find information on hundreds of conditions. Check your symptoms. Improve your lifestyle.
- MedlinePlus--a health database maintained by NIH's National Library of Medicine.
- National Institute of Health--information from the US Department of Human & Health Services.
- "Navigating the Net Wisely in a Health Crisis" by Jane E. Brody is a New York Times Health article about using the Internet during a health crisis.
- The New York Times Health section, featuring articles about health and wellness.
- Seattle/LocalHealthGuide is your source for Seattle health news and information.
- USA.gov is the U.S. governments official web portal. USA.gov makes it easy for the public to get U.S. government information and services on the web. USA.gov also serves as the catalyst for a growing electronic government.
- "What You Must Ask Your Doctor" is a video from The Dr. Oz Show gives you three critical question to ask when visiting your Doctor.
- "When Doctors Don't Tell the Truth" by Pauline W. Chen, M.D is a New York Times Health article about transparency and honesty when doctors communicate prognosis and outcomes with patients.
- "Today's hospital: spacious, single rooms, talking beds" by Carol M. Ostrom, Seattle Times Health contributor.
- "More Profits for Health Insurers" is an article by Pilot Health Advocates' founder and owner Claudia Nichols about the cost of health insurance and continuing rate of growth in premiums for insurers.
Informed Decision Making
- FH Consumer Cost Lookup is a national, independent, non-profit that provides information about health insurance and health care costs. It also provides convenient medical and dental cost estimates through their easy-to-use estimator.
- Health Insurance Finder from HealthCare.gov.
- HealthWell Foundation is committed to addressing the needs of individuals with insurance who cannot afford their copayments, and premiums for important medical treatments.
- "How to choose good health insurance" from ConsumerReports.org.
- "Out-of-network care is expensive—but a couple of new options help" by Michelle Andrews published on the Seattle/LocalHealthGuide.
- "VA Aid & Attendance Self-Help Guide" from Aging with Grace provides useful information for understanding eligibility requirements for this Veterans Administration benefit. (Downloadable for $24.95.)
Know About Where You Get Your Care
- Community Checkup from the Puget Sound Health Alliance.
- HealthCare.gov--provides information about finding insurance options, prevention, comparing care quality, and understanding the Patient Protection and Affordable Care Act.
- HealthCare.gov--compare hospitals, physicians, nursing homes, and home health agencies.
- Medicare Hospital Compare is the US Department of Health & Human Services’ comparison tool for Medicare hospitals.
- Medicare Nursing Home Compare is the US Department of Health & Human Services’ comparison tool for Medicare nursing homes.
- "How Medicare Fails the Elderly" by Jane Gross for The New York Times Sunday Review Opinion Page.
- Medicare.gov provides information about medicare basics, benefits, and eligibility and enrollment. It also provides information about how to file an appeal.
- Medicare Quiz is an interactive quiz sponsored by the Kaiser Family Foundation that tests your knowledge about Medicare, it's benefits and rules.
- "How Malnutrition Causes Obesity" by Mark Hyman, MD for The Huffington Post Healthy Living section.
- "Low Vitamin D Hikes Death Risk in Elderly" by Chrystal Phend, Senior Staff Writer, MedPage Today.
- Mind Over Platter is a free presentation brought to you by the Society for Participatory Medicine about choosing the foods you eat for optimum health.
- "A Nursing Home Shrinks Until It Feels Like a Home" is a New York Times Health section article by Laurie Tarkan that covers how it might be possible to transform nursing homes in the way they care for patients.
- "The best diagnostic medical device is right in your own home" by George Lundberg, MD uncovers the proper use of the everyday bathroom scale for controlling your weight.
- "Calories Are Everywhere, Yet Hard to Track" by Jane E. Brody for The New York Times Health column.
- "Childhood Obesity Leads to Unnecessary Surgeries" by Catherine Musemeche for The New York Times Style page takes a look at childhood obesity and how it's tied to gallbladder disease.
- "High level of dietary restraint is one of 7 keys to keeping weight off" by Stone Hearth News provides several tips for keeping the weight off.
- "How Does Your Wasteline Matter? Let Us Count the Ways." by Gina Kolata for The New York Times Health column.
- Advocacy for Patients with Chronic Illness, Inc.
- "Advocates Can Help" by Kristen Gerencher for The Wall Street Journal.
- "A health advocate can help you get the best care: Why It's Wise to Use a Health Advocate" is an information article from the Seattle/LocalHealthGuide that discusses the benefits of having a health advocate on your side when facing a difficult medical decision.
- decision.org is a non-profit organization that is a resource for patients seeking medical insights about such things as clinical trials, access to drugs, and insurance reimbursement.
- "Here to keep you healthy: Advocates navigate the health care hurricane" is a Chicago Tribune article about what health care advocates do.
- Health Care Assistance in Washington State
- "Here to keep you health: Advocates navigate the health care hurricane" is an article about the role of health care advocates.
- Informed Medical Decisions Foundation (also known as the Foundation for Informed Medical Decision Making works to "advance evidence-based shared decision making through research, policy, clinical models and patient decision aids."
- National Health Information Center (NHIC) is a health information referral service. NHIC puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers.
- National Patient Advocate Foundation is a national non-profit organization that provides you with a voice in improving access to and reimbursement for high-quality health care through regulatory and legislative reform at the state and federal level.
- Washington State Long-Term Care Ombudsman Program promotes the interests, well-being, and resident’s rights in long-term care facility residents.
- "What Does a Patient Advocate Do?" by ADVOConnection's Trisha Torrey.
- "Why You May Need a Health Advocate" by Carolyn M. Clancy, M.D., AHRQ from an AARP "My Medical Manager" bulletin.
- An Alphabet of Good Health in a Sick World by Martha Grout, MD, MD(H)
- Help Your Doctor Know You--improve doctor-patient communications with this simple, straightforward one-page worksheet.
- Patient Empowerment--Trishia Torrey’s newsletter, "Patient Empowerment Guide," discusses many issues in health care, and provides practical information.
- Patient Tips for Reducing Medical Errors
- The Savvy Patient’s Tool Kit by author and patient advocate, Margo Corbett. She provides you with a comprehensive guide to better health care.
- You Bet Your Life-The 10 Mistakes Every Patient Makes by Trisha Torrey.
- "20 Tips to Help Prevent Medical Errors" is a U.S. Department of Health & Human services patient fact sheet that gives you tips about what you can do to get safer care.
- "Advocates for Residents Rights"--an informative video from the Long-Term Care Ombudsman Program.
- "Another Hospital Hazard for the Elderly" by Susan Seliger from The New Old Age blog of the New York Times.
- CampaignZero Safety Checklists published by CampaignZero Families for Patient Safety.
- Cautious Patient Foundation encourages patients to participate in their health care for best results.
- "Checklists that patients and doctors follow can improve hospital care" from The Washington Post National edition, written by Michelle Andrews.
- The Empowered Patient Coalition is a California non-profit and charitable organization that informs, engages, and empowers people to take a greater role in their medical treatment.
- Institute of Medicine of the National Academies is an independent, non-profit organization that provides authoritative advice to decision makers and the public. This organization is not affiliated with the government--federal, local, or state.
- The Joint Commission is a well-respected and independent non-profit organization. It accredits and certifies over 19,000 health care organizations and programs throughout the US.
- The Patient Survival Guide: 8 Simple Solutions to Prevent Hospital and Healthcare-Associated Infections by Dr. Maryanne McGuckin with Toni Goldfarb.
- RID (Committee to Reduce Infection Deaths) is a non-profit educational campaign that is committed to correcting a deadly problem that kills more people each year in the U.S. that AIDS, breast cancer, and auto accidents combined.
- Safe Care Campaign is an organization that provides information about preventing infections.
- "Your hospital survival guide: The basics" is a ConsumerReports.org Doctors & Hospitals video that features advice for a safe hospital stay.
Quality of Life
- "96% of Physicians Favor Enhancing Quality of Life for Seriously Ill Patients over Extending Life as Long as Possible" an article from the latest issue of Quality of Life Matters® newsletter, an educational resource by the Academy of Hospice and Palliative Medicine.
- Quality of Life Publishing Co. specializes in books and newsletters that help ease the way for patients and families with terminal illness and loss.
Right to Die
- "Push for the Right to Die Grows in the Netherlands" is a New York Times Health column article by David Jolly.
- "Daylight Saving Time--Sleep Tips from the Polyclinic" is a Seattle/Local Health article by Gina Chen, MD that offers healthy tips for sleeping.
- American Cancer Society--For more than 40 years, the American Cancer Society's Reach to Recovery program has helped people cope with their breast cancer experience.
- Camp Agape Northwest--PO BOX 65504, University Place, WA 98464; 206-325-4347.
- Gilda's Club Seattle offers a community-based program of social, emotional, and educational support for cancer survivors, family, and friends.
- ElderFriends is a volunteer-based program that provides companionship, outreach, and advocacy services to isolated older adults throughout Seattle and King County.
- The Hole in the Wall Gang Camp--1-860-429-3444. A summer camp founded by Paul Newman for children with cancer and serious blood diseases. Located in Ashford, Connecticut.
- Senior Resource Center Resources is a useful center for caregivers who seek expert advice and other resources for caring for the elderly.
- Treatment diaries is a social network for anyone that has been touched by illness.
- About Cancer Guide--a very good, comprehensive cancer information source.
- About Herbs, Botanicals & Other Products--evidence-based information about herbs, botanicals, supplements and more from the Memorial Sloan-Kettering Cancer Center.
- cancerfacts.com--an online resource for people with cancer, their families, and caregivers that is dedicated to delivering accurate and personalized information. Their Cancer Profiler Treatment Tool is an interactive decision support tool that helps you to make informed treatment decisions.
- Cancer Survival Toolbox is the National Coalition for Cancer Survivorship's award-winning free, self-learning audio program that helps people develop important skill to meet and understand the challenges of their illness.
- "Chemo's deleterious effects on the brain, new evidence" by Stone Hearth News (April 20, 2012).
- National Cancer Institute--also known as the Cancer.gov site, this is one of the better places to go for accurate, credible cancer information.
- National Coalition for Cancer Survivorship (NCCS)--NCCS is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care. NCCS organizes Cancer Advocacy Now!, a legislative advocacy network that engages constituents across the country in federal cancer-related issues. Patient education is also a priority for NCCS. We believe that access to credible and accurate patient information, such as NCCS’s award-winning Cancer Survival Toolbox® is key to demanding and receiving quality cancer care. Learn more and Register for their newsletter.
- "Patient Voices: Childhood Cancer" from the New York Times Health Guide. This video features how children and their families cope with childhood cancer.
- "Picture Your Life After Cancer" is a New York Times photo collage, featuring the challenges and successes of cancer survivors throughout the U.S.
- "Who Will Help Cancer Survivors Stay Healthy When Treatment is Over?" by Jessie Gruman, PhD of the Center for Advancing Health.
- Working Out Cancer is a fitness site that provides tools and resources to help people make positive lifestyle choices that can help prevent getting cancer.